The Ups and Downs of Parenting Young Children With Type 1 Diabetes: A Crowdsourcing Study

J Pediatr Psychol. 2017 Sep 1;42(8):846-860. doi: 10.1093/jpepsy/jsx056.


Objectives: Parenting young children with type 1 diabetes (YC-T1D) entails pervasive challenges; parental coping may influence child and parent outcomes. This study used a qualitative descriptive design to describe these challenges comprehensively to inform the user-centered design of an Internet coping resource for parents.

Methods: A "Parent Crowd" of 153 parents of children with T1D onset at ≤ 5 years old submitted textual responses online to open-ended questions about parenting YC-T1D. Systematic coding organized responses into domains, themes, and examples. A supplemental focus group of racial/ethnic minority parents enhanced the sample's diversity and validated findings from the Parent Crowd.

Results: Similar domains and themes emerged from responses of crowdsourcing and focus group participants. In each domain, parenting YC-T1D was challenging, but there was also substantial evidence of positive coping strategies and adaptability.

Conclusions: The study yielded rich data to inform user-centered design of an Internet resource for parents of YC-T1D.

Keywords: crowdsourcing; parental coping; social support; type 1 diabetes; young children.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Adaptation, Psychological*
  • Adult
  • Child, Preschool
  • Crowdsourcing
  • Diabetes Mellitus, Type 1 / psychology*
  • Female
  • Humans
  • Male
  • Parenting / psychology*
  • Parents / psychology*
  • Qualitative Research
  • Retrospective Studies
  • Social Support