Personalized Decision Making: Practical Recommendations for Antenatal Counseling for Fragile Neonates

Clin Perinatol. 2017 Jun;44(2):429-445. doi: 10.1016/j.clp.2017.01.006. Epub 2017 Apr 1.


Emphasis has been placed on engaging parents in processes of shared decision making for delivery room management decisions of critically ill neonates whose outcomes are uncertain and unpredictable. The goal of antenatal consultation should rather be to adapt to parental needs and empower them through a personalized decision-making process. This can be done by acknowledging individuality and diversity while respecting the best interests of neonates. The goal is for parents to feel like they have agency and ability and are good parents, before birth, at birth, and after, either in the NICU or until the death of their child.

Keywords: Antenatal consultation; Ethics; NICU; Personalized decision making limit of viability; Prematurity; Shared decision making palliative care.

Publication types

  • Review

MeSH terms

  • Communication*
  • Counseling*
  • Decision Making*
  • Decision Support Techniques
  • Ethics, Medical
  • Fetal Viability*
  • Gestational Age
  • Humans
  • Infant, Extremely Premature
  • Infant, Newborn
  • Informed Consent
  • Intensive Care Units, Neonatal
  • Neonatology
  • Palliative Care*
  • Parents*
  • Precision Medicine
  • Resuscitation*