Dupuytren Disease: Is There Enough Comprehensive Patient Information on the Internet?

Grzegorz Zuk; Katharina B Reinisch; Dimitri A Raptis; Sonia Fertsch; Merlin Guggenheim; Adrian F Palma

doi:10.2196/ijmr.7822

Dupuytren Disease: Is There Enough Comprehensive Patient Information on the Internet?

Interact J Med Res. 2017 Jun 22;6(1):e7. doi: 10.2196/ijmr.7822.

Authors

Grzegorz Zuk¹, Katharina B Reinisch¹, Dimitri A Raptis², Sonia Fertsch³, Merlin Guggenheim⁴, Adrian F Palma¹

Affiliations

¹ Hospital of Wetzikon, Department of Surgery, Wetzikon, Switzerland.
² Cantonal Hospital of Olten, Department of Surgery, Olten, Switzerland.
³ Sana Hospital, Department of Plastic and Esthetic Surgery, Düsseldorf, Germany.
⁴ Department of Plastic Surgery and Hand Surgery, University Hospital Zürich, Zürich, Switzerland.

Abstract

Background: Dupuytren disease is a chronic nonmalign fibroproliferative disorder that causes finger contractures via proliferation of new tissue under the glabrous skin of the hand, resulting in multiple functional limitations for the patient. As many surgical therapy options exist, patients suffering from this condition actively search for information in their environment before consulting a health professional.

Objective: As little is known about the quality of Web-based patient information, the aim of this study was to conduct its systematic evaluation using a validated tool.

Methods: A total of 118 websites were included, and qualitative and quantitative assessment was performed using the modified Ensuring Quality Information for Patients (EQIP) tool. This standardized and reproducible tool consists of 36 items to assess available information in three categories: contents, identification, and structure data. Scientific data with restricted access, duplicates, and irrelevant websites were not included.

Results: Only 32 websites addressed more than 19 items, and the scores did not significantly differ among the website developers. The median number of items from the EQIP tool was 16, with the top websites addressing 28 out of 36 items. The quality of the newly developed websites did not increase with passing time.

Conclusions: This study revealed several shortcomings in the quality of Web-based information available for patients suffering from Dupuytren disease. In the world of continuously growing and instantly available Web-based information, it is the health providers' negligence of the last two decades that there are very few good quality, informative, and educative websites that could be recommended to patients.

Keywords: Internet; congenital hand deformity; patient education.

©Grzegorz Zuk, Katharina B Reinisch, Dimitri A Raptis, Sonia Fertsch, Merlin Guggenheim, Adrian F Palma. Originally published in the Interactive Journal of Medical Research (http://www.i-jmr.org/), 22.06.2017.