Family Involvement in Quality Improvement: From Bedside Advocate to System Advisor

Clin Perinatol. 2017 Sep;44(3):553-566. doi: 10.1016/j.clp.2017.05.008.


Family involvement in newborn intensive care quality improvement dates back to the 1980s. In recent years, there has been an evolution of support for family partnerships at the bedside, transforming parents from being passively present to being active and engaged caregivers and team members. Through those same efforts, a transformational understanding of the power of the family perspective in system design and improvement has occurred. Even with the progression and deepening of this involvement, opportunities exist to learn from families and to improve the quality of neonatal care as a result of the unique family perspective.

Keywords: Family advisors; Family centered care (FCC); Family engaged care (FEC); Family integrated care; Family leaders; Patient and family engagement (PFE); Quality improvement (QI); Quality improvement collaborative.

Publication types

  • Review
  • Video-Audio Media

MeSH terms

  • Decision Making
  • Family
  • Humans
  • Infant, Newborn
  • Intensive Care Units, Neonatal / standards*
  • Intensive Care, Neonatal / standards*
  • Parents*
  • Patient Participation*
  • Quality Improvement / organization & administration*