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. 2017 Oct;107(10):1608-1611.
doi: 10.2105/AJPH.2017.303933. Epub 2017 Aug 17.

Legal, Practical, and Ethical Considerations for Making Online Patient Portals Accessible for All

Courtney R Lyles  1 , Jim Fruchterman  1 , Mara Youdelman  1 , Dean Schillinger  1
Affiliations

Legal, Practical, and Ethical Considerations for Making Online Patient Portals Accessible for All

Courtney R Lyles et al. Am J Public Health. 2017 Oct.

Abstract

Largely driven by the financial incentives of the HITECH Act's Meaningful Use program as part of federal US health care reform, access to portal Web sites has rapidly expanded, allowing many patients to view their medical record information online. Despite this expansion, there is little attention paid to the accessibility of portals for more vulnerable patient populations-especially patients with limited health literacy or limited English proficiency, and individuals with disabilities. We argue that there are potential legal mandates for improving portal accessibility (e.g., the Civil Rights and the Rehabilitation Acts), as well as ethical considerations to prevent the exacerbation of existing health and health care disparities. To address these legal, practical, and ethical considerations, we present standards and broad recommendations that could greatly improve the reach and impact of portal Web sites.

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References

    1. Peacock S, Reddy A, Leveille SG et al. Patient portals and personal health information online: perception, access, and use by US adults. J Am Med Inform Assoc. 2017;24(e1):e173–e177. - PMC - PubMed
    1. Patel V, Barker W, Siminerio E. Trends in Consumer Access and Use of Electronic Health Information. Washington, DC: Office of the National Coordinator for Health Information Technology; 2015. Available at: https://www.healthit.gov/sites/default/files/briefs/oncdatabrief30_acces.... Accessed January 14, 2017.
    1. Kruse CS, Bolton K, Freriks G. The effect of patient portals on quality outcomes and its implications to meaningful use: a systematic review. J Med Internet Res. 2015;17(2):e44. - PMC - PubMed
    1. Centers for Medicare and Medicaid Services. Meaningful use definitions and objectives. 2015. Available at: https://www.healthit.gov/providers-professionals/meaningful-use-definiti.... Accessed January 13, 2017.
    1. Henry J, Pylypchuk Y, Patel V. Electronic Capabilities for Patient Engagement Among US Non-Federal Acute Care Hospitals: 2012–2015. Washington, DC: Office of the National Coordinator for Health Information Technology; 2016. Available at: https://dashboard.healthit.gov/evaluations/data-briefs/hospitals-patient.... Accessed January 13, 2017.

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