Creating Conditions for Patients' Values to Emerge in Clinical Conversations: Perspectives of Health Care Team Members
- PMID: 28890950
- PMCID: PMC5589444
- DOI: 10.1145/3064663.3064669
Creating Conditions for Patients' Values to Emerge in Clinical Conversations: Perspectives of Health Care Team Members
Abstract
Eliciting, understanding, and honoring patients' values- the things most important to them in daily life-is a cornerstone of patient-centered care. However, this rarely occurs explicitly as a routine part of clinical practice. This is particularly problematic for individuals with multiple chronic conditions (MCC) because they face difficult choices about how to balance competing demands for self-care in accordance with their values. In this study, we sought to inform the design of interventions to support conversations about patient values between patients with MCC and their health care providers. We conducted a field study that included observations of 21 clinic visits for patients who have MCC, and interviews with 16 care team members involved in those visits. This paper contributes a practice-based account of ways in which providers engage with patient values, and discusses how future work in interactive systems design might extend and enrich these engagements.
Keywords: H.5.m. Information interfaces and presentation (e.g., HCI): Miscellaneous; J.3 Life and Medical Sciences: Health; Values; multiple chronic conditions; patient-provider communication.
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References
-
- Agaku Israel T, Adisa Akinyele O, Ayo-Yusuf Olalekan A, Connolly Gregory N. Concern about security and privacy, and perceived control over collection and use of health information are related to withholding of health information from healthcare providers. Journal of the American Medical Informatics Association. 2014;21(2):374–378. https://doi.org/10.1136/amiajnl-2013-002079. - DOI - PMC - PubMed
-
- Bagalkot Naveen L, Grönvall Erik, Sokoler Tomas. Concordance: design ideal for facilitating situated negotiations in out-of-clinic healthcare. CHI’14 Extended Abstracts on Human Factors in Computing Systems. 2014:855–864. https://doi.org/10.1145/2559206.2578873. - DOI
-
- Bayliss Elizabeth A, Steiner John F, Fernald Douglas H, Crane Lori A, Main Deborah S. Descriptions of barriers to self-care by persons with comorbid chronic diseases. Annals of family medicine. 2003;1(1):15–21. https://doi.org/10.1370/afm.4. - DOI - PMC - PubMed
-
- Berry Andrew BL, Lim Catherine, Hartzler Andrea L, Hirsch Tad, Wagner Edward H, Ludman Evette, Ralston James D. How Values Shape Collaboration Between Patients with Multiple Chronic Conditions and Spousal Caregivers. Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. 2017 https://doi.org/10.1145/3025453.3025923. - DOI
-
- Borning Alan, Muller Michael. Next steps for value sensitive design. Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. 2012:1125–1134.
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