Building a transitional care checklist in rheumatology: A Delphi-like survey

Joint Bone Spine. 2018 Jul;85(4):435-440. doi: 10.1016/j.jbspin.2017.09.003. Epub 2017 Sep 28.


Objectives: To design a transitional care checklist to be used by and facilitate the work of health professionals in providing transitional care for children with a chronic rheumatologic disease and their families.

Methods: A Delphi-like study among an international expert panel was carried out in four steps: (1) a working group of 6 specialists established a draft; (2) a web-survey among a panel of international experts evaluated it; (3) a 2-day consensus conference with an expert panel discussed items not reaching agreement; (4) a web-survey among the panel of international experts with the list of reformulated items.

Results: The first draft of the checklist included 38 items in 3 phases of transition and 5 age groups. Thirty-three international experts evaluated the checklist reaching≥80% agreement for 26 items and ≤80% for 12. The consensus conference of 12 experts discussed and redefined the 12 items. Twenty-five international experts filled out the web-survey and all items reached a minimum of 80% agreement except one. The final checklist was reached.

Conclusions: This Delphi-like study defined what themes should be included and at what age they need to be addressed with patients with a chronic rheumatology disease and their families during transition. This checklist reached a strong international and interdisciplinary consensus while examining transition in a broad way. It should now be spread widely to health professionals to be used by all those who care for adolescents aged≥12 years at times of transition. It could be transposed to most chronic conditions. Recommendations for further research are given.

Keywords: Adolescent; Checklist; Chronic condition; Delphi study; Transition.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adolescent
  • Adult
  • Antirheumatic Agents / therapeutic use*
  • Arthritis, Juvenile / diagnosis
  • Arthritis, Juvenile / therapy*
  • Checklist / methods*
  • Child
  • Chronic Pain / diagnosis
  • Chronic Pain / therapy
  • Combined Modality Therapy
  • Consensus
  • Cross-Sectional Studies
  • Delphi Technique
  • Female
  • France
  • Humans
  • Male
  • Physical Therapy Modalities*
  • Program Evaluation
  • Rheumatology / standards
  • Rheumatology / trends
  • Severity of Illness Index
  • Transitional Care / organization & administration*
  • Treatment Outcome


  • Antirheumatic Agents