Parental assessment of comfort in newborns affected by life-limiting conditions treated by a standardized neonatal comfort care program

J Perinatol. 2018 Feb;38(2):142-147. doi: 10.1038/jp.2017.160. Epub 2017 Oct 19.


Objective: To assess the perception of parents concerning the state of comfort maintained in their infants born with life-limiting conditions and treated by a standardized neonatal comfort care program.

Study design: Participants were parents (n=35 families) who elected comfort care for their newborns diagnosed with life-limiting conditions. Standardized comfort measures including family/infant bonding, warmth, nutrition/hydration and pain/discomfort management were provided to all infants. Parents consented to receive a questionnaire with quantitative response options and open-ended questions.

Results: Forty-two questionnaires (26 from mothers and 16 from fathers) were collected and analyzed. Most parents reported that their child was treated with respect, in a caring, peaceful and non-invasive environment. To the question 'Do you think that overall your baby received comfort' mode response was 'always'.

Conclusion: Parents of infants with life-limiting conditions perceive that their babies experience comfort as a result of the care provided by the standardized Neonatal Comfort Care Program.

MeSH terms

  • Adult
  • Female
  • Humans
  • Infant, Newborn
  • Intensive Care, Neonatal / organization & administration
  • Male
  • New York
  • Palliative Care / methods*
  • Parents / psychology*
  • Patient Care Team / organization & administration
  • Patient Comfort / standards*
  • Practice Guidelines as Topic
  • Prospective Studies
  • Qualitative Research
  • Surveys and Questionnaires
  • Young Adult