Comparison of pediatric self reports and parent proxy reports utilizing PROMIS: Results from a chiropractic practice-based research network

Complement Ther Clin Pract. 2017 Nov:29:48-52. doi: 10.1016/j.ctcp.2017.08.003. Epub 2017 Aug 31.

Abstract

Objective: To measure the cross-informant variant of pediatric quality of life (QoL) based on self-reports and parent proxy measures.

Methods: A secondary analysis of baseline data obtained from two independent studies measuring the QoL based on the pediatric PROMIS-25 self-report and the PROMIS parent-proxy items banks. A scoring manual associated raw scores to a T score metric (mean = 50; SD = 10). Reliability of QoL ratings utilized the ICC while comparison of mean T Scores utilized the unpaired t-test.

Results: A total of 289 parent-child dyads comprised our study responders. Average age for parents and children was 41.27 years and 12.52 years, respectively. The mean T score (child self-report: parent proxy) for each QoL domains were: mobility (50.82:52.58), anxiety (46.73:44.21), depression (45.18:43.60), fatigue (45.59:43.92), peer-relationships (52.15:52.88) and pain interference (47.47:44.80).

Conclusion: Parents tend to over-estimate their child's QoL based on measures of anxiety, depression, fatigue, peer-relationships and pain interference.

Keywords: Chiropractic; PROMIS; Pediatric; Quality of life.

Publication types

  • Comparative Study

MeSH terms

  • Adolescent
  • Adult
  • Aged
  • Anxiety
  • Child
  • Child Health*
  • Chiropractic
  • Depression
  • Fatigue
  • Female
  • Health Knowledge, Attitudes, Practice*
  • Humans
  • Interpersonal Relations
  • Male
  • Middle Aged
  • Pain
  • Parent-Child Relations
  • Parents*
  • Proxy
  • Quality of Life*
  • Reproducibility of Results
  • Self Report
  • Surveys and Questionnaires