Facilitators and Barriers for Advance Care Planning Among Ethnic and Racial Minorities in the U.S.: A Systematic Review of the Current Literature

J Immigr Minor Health. 2018 Oct;20(5):1277-1287. doi: 10.1007/s10903-017-0670-9.

Abstract

Growing evidence suggests a low engagement in advance care planning (ACP) among ethnic minorities in the U.S. The purpose of this study was to synthesize findings from prior research about ACP among ethnic minorities. An extensive literature search was conducted using multiple electronic databases. After applying inclusion criteria, 26 studies were included. Four categories of facilitators and barriers to ACP were identified: (1) Socio-demographic factors, (2) health status, literacy and experiences, (3) cultural values, and (4) spirituality. Socio-demographic factors showed inconsistent findings regarding their association with ACP engagement. Worse health status and knowledge about ACP are common facilitators across ethnic minority groups, whereas mistrust toward the health care system was a barrier only for Blacks. Collectivistic cultural values influenced ACP engagement among Latinos and Asian Americans; however, spirituality/religion played an important role among Blacks. The implications for culturally competent approaches to promote ACP and future research directions are discussed.

Keywords: Advance care planning; Advance directives; Cultural competence; End-of-life care; Ethnic minorities; Racial minorities.

Publication types

  • Systematic Review

MeSH terms

  • Advance Care Planning / statistics & numerical data*
  • Cultural Characteristics
  • Ethnicity / psychology*
  • Health Knowledge, Attitudes, Practice / ethnology
  • Health Literacy / statistics & numerical data
  • Health Status
  • Humans
  • Minority Groups / psychology*
  • Racial Groups / psychology*
  • Socioeconomic Factors
  • Spirituality