Shared Decision Making in Home Hospice Nursing Visits: A Qualitative Study

J Pain Symptom Manage. 2018 Mar;55(3):922-929. doi: 10.1016/j.jpainsymman.2017.10.022. Epub 2017 Nov 9.

Abstract

Context: Shared decisions between health care providers and patients and families are replacing the traditional physician-driven plans of care. Hospice philosophy recognizes the patient and family as a unit of care and embraces their role in decision making.

Objective: The goal of this study was to evaluate the shared decisions between hospice nurses and patients and family members.

Methods: A secondary analysis of audio recordings of 65 home hospice nurse visits from 65 home hospice nurse visits in 11 different U.S. hospice programs.

Results: To varying degrees, hospice nurses used all the recommended elements of shared decision making during home visits with patients and families; however, not all elements were used in every visit. The most commonly used element was defining a problem, and the least used element was the assessment of patient and family understanding.

Conclusions: Hospice staff can benefit from a more purposeful shared decision-making process and a greater focus on assessment of patient and family understanding and ability to implement plans of care.

Keywords: Shared decision making; caregiving; family; hospice; nurse visits.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Adult
  • Aged
  • Caregivers / psychology
  • Decision Making*
  • Family / psychology
  • Female
  • Health Communication
  • Home Care Services*
  • Hospice and Palliative Care Nursing
  • House Calls*
  • Humans
  • Male
  • Middle Aged
  • Nurse-Patient Relations
  • Nurses / psychology*
  • Qualitative Research