Including the Patient Voice in Patient-Centered Outcomes Research in Integrative Oncology

Jodi MacLeod; Edward Wolff; Alice McAllister; Jun J Mao; Sheila N Garland

doi:10.1093/jncimonographs/lgx008

Including the Patient Voice in Patient-Centered Outcomes Research in Integrative Oncology

J Natl Cancer Inst Monogr. 2017 Nov 1;2017(52):lgx008. doi: 10.1093/jncimonographs/lgx008.

Authors

Jodi MacLeod¹, Edward Wolff¹, Alice McAllister¹, Jun J Mao¹, Sheila N Garland¹

Affiliation

¹ CHOICE Patient Advisory Panel, Philadelphia, PA; Bendheim Integrative Medicine Center, Memorial Sloan Kettering Cancer Center, New York, NY; Departments of Psychology and Oncology, Memorial University of Newfoundland, St. John's, NL, Canada.

Abstract

The objective of this paper is to describe our experience as patient advisors as we work on a Patient-Centered Outcomes Research Institute-funded project, CHoosing Options for Insomnia in Cancer Effectively (CHOICE). The CHOICE Study is a comparative effectiveness trial comparing acupuncture with cognitive behavioral therapy for insomnia in cancer survivors. We describe the composition of the patient advisory panel, the patient engagement process, and our contributions throughout the study, and we highlight some of our successes so far. Our motivation to contribute to the research process and our hopes for the future of patient-centered outcomes research are discussed.

Publication types

Letter

MeSH terms

Complementary Therapies / methods
Humans
Integrative Oncology* / methods
Outcome Assessment, Health Care*
Patient Reported Outcome Measures*
Patient-Centered Care*

Grants and funding

P30 CA008748/CA/NCI NIH HHS/United States