Do Parents and Clinicians Agree on Ratings of Autism-Related Behaviors at 12 Months of Age? A Study of Infants at High and Low Risk for ASD

J Autism Dev Disord. 2018 Apr;48(4):1069-1080. doi: 10.1007/s10803-017-3410-z.


Given the emphasis on early screening for ASD, it is crucial to examine the concordance between parent report and clinician observation of autism-related behaviors. Similar items were compared from the First Year Inventory (Baranek et al. First-Year Inventory (FYI) 2.0. University of North Carolina, Chapel Hill, 2003), a parent screener for ASD, and the ADOS-2 Toddler Module (Lord et al. 2013), a standardized ASD diagnostic tool. Measures were administered concurrently to 12-month-olds at high and low risk for ASD. Results suggest that clinicians and parents rated behaviors similarly. In addition, both informants rated high-risk infants as more impaired in several social-communication behaviors. Furthermore, the format of questions impacted agreement across observers. These findings have implications for the development of a new generation of screening instruments for ASD.

Keywords: ADOS-T; ASD; Clinical assessment; FYI; High-risk infants; Infancy; Parent questionnaires; Screening.

Publication types

  • Comparative Study

MeSH terms

  • Autism Spectrum Disorder / diagnosis*
  • Autism Spectrum Disorder / nursing
  • Autism Spectrum Disorder / psychology*
  • Dissent and Disputes*
  • Early Diagnosis*
  • Female
  • Humans
  • Infant
  • Male
  • Parents*
  • Physicians* / psychology
  • Social Behavior