Health-related Quality of Life in Adolescents With Psoriasis: An Interview-Based Study

Br J Dermatol. 2018 Jun;178(6):1404-1411. doi: 10.1111/bjd.16326. Epub 2018 Apr 24.

Abstract

Background: Psoriasis is a common skin disease affecting the physical, psychological and social well-being of patients and their families. Most research so far has been limited to adults, and little is known about the qualitative experiences of young people with psoriasis.

Objectives: To provide an in-depth understanding of the impact of psoriasis on adolescents' health-related quality of life (HRQoL).

Methods: Patients and their parents were recruited from a dermatology outpatient clinic, the Danish National Birth Cohort and the Danish Psoriasis Association. Thirty-six semistructured interviews were conducted with adolescents with psoriasis aged 12-17 years (n = 18), their parents (n = 14) and health professionals working with psoriasis (n = 4). Interviews were digitally recorded, transcribed verbatim and analysed using inductive thematic analysis.

Results: The participants reported psoriasis-related HRQoL challenges within six main themes: physical symptoms, feeling different, psoriasis-related worry about the future, increased attention, attempts to conceal skin, and treatment-related frustrations and worry. Taken together, a broad range of the reported difficulties appeared to arise from appearance-related concerns. The impact of psoriasis and its treatment on the adolescents' daily lives varied considerably.

Conclusions: This first in-depth, qualitative study of HRQoL in adolescents with psoriasis provides a conceptual framework for understanding the impact of psoriasis and its treatment on the physical, psychological and social aspects of their daily lives.

MeSH terms

  • Adolescent
  • Age of Onset
  • Anxiety / etiology
  • Attention
  • Body Image / psychology
  • Child
  • Denmark
  • Dermatologic Agents / adverse effects
  • Female
  • Humans
  • Male
  • Psoriasis / drug therapy
  • Psoriasis / psychology*
  • Quality of Life / psychology*
  • Self Concept

Substances

  • Dermatologic Agents