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Review
, 5 (2)

Pediatric Palliative Care for Children With Progressive Non-Malignant Diseases

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Review

Pediatric Palliative Care for Children With Progressive Non-Malignant Diseases

Harold Siden. Children (Basel).

Abstract

A substantial number of children cared for by pediatric palliative care physicians have progressive non-malignant conditions. Some elements of their care overlap with care for children with cancer while other elements, especially prognosis and trajectory, have nuanced differences. This article reviews the population, physical-emotional and social concerns, and trajectory.

Keywords: disease progression; emotional support; hospice care; inborn genetic diseases; metabolic diseases; palliative care; palliative medicine; social support; symptom management; terminal care.

Conflict of interest statement

The author declares no conflict of interest.

Figures

Figure 1
Figure 1
Children on Program and Deaths on Program Canuck Place Children’s Hospice.
Figure 2
Figure 2
(a) Intervals from referral to palliative care until death for cancer patients; (b) Intervals from referral to palliative care until death for patients with non-cancer conditions.

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References

    1. Worswick J. A House Called Helen: The Development of Hospice Care for Children. 2nd ed. Oxford University Press; Oxford, UK: 2000.
    1. Spicer S., Macdonald M., Davies D., Vadeboncoeur C., Siden H. Introducing a Lexicon of Terms for Pediatric Palliative Care. Paediatr. Child Health. 2015;20:155–156. doi: 10.1093/pch/20.3.155. - DOI - PMC - PubMed
    1. ACT (The Association for Children’s Palliative Care) RCPCH A Guide to the Development of Children’s Palliative Care Services: Report of the Joint Working Party of the Association for Children with Life-Threatening or Terminal Conditions and Their Families (ACT) and the Royal College of Paediatrics and Child Health (RCPCH) ACT; Bristol, UK: 1997.
    1. Chavoshi N., Miller T., Siden H. Resource utilization among individuals dying of pediatric life-threatening diseases. J. Palliat. Med. 2013;16:1210–1214. doi: 10.1089/jpm.2013.0110. - DOI - PubMed
    1. Bergstraesser E., Hain R.D., Pereira J.L. The development of an instrument that can identify children with palliative care needs: The Paediatric Palliative Screening Scale (PaPaS Scale): A qualitative study approach. BMC Palliat. Care. 2013;12:20 doi: 10.1186/1472-684X-12-20. - DOI - PMC - PubMed
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