Feasibility of Using PROMIS ® in Individuals With Advanced Parkinson's Disease and Their Caregivers

Res Gerontol Nurs. 2018 May 1;11(3):129-136. doi: 10.3928/19404921-20180329-01. Epub 2018 Apr 11.


The purpose of the current study was to test the feasibility of using the Patient-Reported Outcomes Measurement Information System (PROMIS®) measures to assess change in self-reported health status for dyads of individuals with advanced Parkinson's disease (PD) and their caregivers. Fifteen dyads (N = 30) participated and took 11 PROMIS measures. The measures showed good reliability (all Cronbach's alphas > 0.82). Dyads reported worse health status than the PROMIS reference groups at baseline and 6-month follow up. Paradoxically, individuals with PD scored higher in Applied Cognition-General Concerns, Companionship, and Emotional Support than the reference groups at both times. The only domain that changed significantly for individuals with PD over 6 months was Applied Cognition-General Concerns. The results of this study suggest that future research (a) could use the PROMIS measures with dyads, and (b) would be warranted for tracking changes over time using the PROMIS measures with larger samples, garnering more power. In addition, future research could examine if the computer adaptive versions work for individuals with advanced PD. [Res Gerontol Nurs. 2018; 11(3):129-136.].

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Caregivers / psychology*
  • Feasibility Studies
  • Female
  • Health Status*
  • Humans
  • Male
  • Parkinson Disease / psychology*
  • Patient Reported Outcome Measures*
  • Quality of Life
  • Self Report*
  • Surveys and Questionnaires