Impact of a rare chronic genodermatosis on family daily life: the example of epidermolysis bullosa

Br J Dermatol. 2018 Nov;179(5):1177-1178. doi: 10.1111/bjd.16710. Epub 2018 Sep 5.

Authors

H Dufresne^{1

2}, S Hadj-Rabia^{1

3}, C Bodemer^{1

3}

Affiliations

¹ Reference Centre for Genodermatoses and Rare Skin Diseases (MAGEC) and Department of Dermatology, Paris, France.
² Department of Paediatric Social Work, Paris, France.
³ INSERM U1163 and Institut Imagine, Hôpital Universitaire Necker-Enfants Malades, APHP, Université Paris Descartes - Sorbonne Paris Cité, 149 rue de Sèvres, 75015, Paris, France.

PMID: 29710387
DOI: 10.1111/bjd.16710

No abstract available

Publication types

Letter

MeSH terms

Adolescent
Bandages / economics
Child
Child, Preschool
Dermatologic Agents / economics
Dermatologic Agents / therapeutic use
Employment / economics
Employment / statistics & numerical data*
Epidermolysis Bullosa / economics*
Epidermolysis Bullosa / therapy
Fathers / statistics & numerical data
Health Expenditures / statistics & numerical data*
Hospitalization / economics
Hospitalization / statistics & numerical data
Humans
Infant
Long-Term Care / economics
Long-Term Care / statistics & numerical data
Male
Mothers / statistics & numerical data
Social Workers / statistics & numerical data
Socioeconomic Factors*
Surveys and Questionnaires / statistics & numerical data

Substances

Dermatologic Agents