Living Life and Doing Things Together: Collaborative Research With Couples Where One Partner Has a Diagnosis of Dementia

Qual Health Res. 2018 Sep;28(11):1719-1734. doi: 10.1177/1049732318786944. Epub 2018 Jul 21.


The aim of this study is to identify relevant content for a self-management guide by using the outcomes of previous research in combination with knowledge and experiences from couples where one partner has a diagnosis of dementia. The study was carried out in three phases: (a) literature search of previous research related to well-being and couplehood in dementia; (b) interviews with couples with dementia based on the findings of the literature search; and (c) further authentication of the findings within expert groups of people with dementia and carers. For analysis of data, we used a hybrid approach of thematic analysis with combined deductive and inductive approaches. The findings of this study indicated that the four main themes "Home and Neighborhood," "Meaningful Activities and Relationships," "Approach and Empowerment," and "Couplehood" with related subthemes could be appropriate targets for a self-management guide for couples where one partner has a diagnosis of dementia.

Keywords: Sweden; UK; collaborative research; couples; dementia; salutogenesis; self-management; thematic analysis.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adaptation, Psychological
  • Aged
  • Communication
  • Dementia / psychology*
  • Female
  • Humans
  • Interpersonal Relations
  • Male
  • Mental Health
  • Power, Psychological
  • Qualitative Research
  • Quality of Life
  • Residence Characteristics
  • Social Support
  • Spouses / psychology*
  • Stress, Psychological / psychology
  • Sweden