Patient Voices Network: Bringing Breast Cancer Awareness and Action into Underserved Communities

J Natl Med Assoc. 2018 Oct;110(5):448-454. doi: 10.1016/j.jnma.2017.10.008. Epub 2017 Nov 26.

Abstract

Background/purpose: African American women are diagnosed with breast cancer at later stages and have higher mortality rates than white women. The Patient Voices Network (PVN), a community group whose vision is "a community of educated and involved patients working hand in hand with physicians in making decisions about their own health care," conceived of and implemented a walk to raise awareness of breast cancer and link women to screening resources in a low-income, urban community OBJECTIVES: To describe the planning and implementation of the Concerned About You: Breast Cancer Awareness Walk & Wellness Event and its impact on an academic community partnership.

Methods: A narrative approach was used. Meeting minutes and event planning notes were reviewed. Community participation rates and participant satisfaction were tracked using registration records and a survey administered at the event.

Results: 328 community members registered and 194 attended. Responses to a satisfaction survey indicated community buy-in and interest in future events. Two women were screened at the event and 78 were screened at a follow-up opportunity at their primary care practices. The process was driven by participatory guidelines and laid the foundation for future activities.

Conclusions: Community input addressed the need for screening mammography in an underserved community. The partnership approach featured complementary strengths of both patients and University staff, fostered skill building and co-learning, and ultimately strengthened our partnership. A partnered approach may be effective in engaging hard-to-reach populations to address health disparities.

Keywords: African American; Health disparities; breast cancer; health outreach; participatory.

MeSH terms

  • Adolescent
  • Adult
  • Aged
  • Black or African American*
  • Breast Neoplasms* / ethnology
  • Early Detection of Cancer*
  • Female
  • Health Promotion / methods*
  • Humans
  • Medically Underserved Area
  • Middle Aged
  • New York
  • Urban Population
  • Young Adult