The Community and Patient Partnered Research Network (CPPRN): Application of Patient-Centered Outcomes Research to Promote Behavioral Health Equity

Ethn Dis. 2018 Sep 6;28(Suppl 2):295-302. doi: 10.18865/ed.28.S2.295. eCollection 2018.


Objective: We describe the rationale, development, and progress on the Community and Patient Partnered Research Network (CPPRN). The CPPRN builds on more than a decade of partnered work and is designed to promote health equity by developing partnered research on behavioral health and social risk factors in Los Angeles and New Orleans.

Setting: A community-academic partnership across Los Angeles County and New Orleans.

Methods: Review of rationale, history, structure, activities and progress in applying community partnered participatory research (CPPR) to CPPRN.

Findings: Patient and community stakeholders participated in all phases of development, including local and national activities. Key developments include partnered planning efforts, progress on aggregating a large, de-identified dataset across county agencies, and development of an information technology-supported screening approach for behavioral and social determinants in health care, social, and community-based settings.

Conclusion: The CPPRN represents a promising approach for research data networks, balancing the potential benefit of information technology and data analytic approaches while addressing potential risks and priorities of relevant stakeholders.

Keywords: Behavioral Health; Community Engagement; PCORnet; Patient-Powered Research Network; Research Network.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Community Networks / organization & administration*
  • Community Participation / methods
  • Community-Based Participatory Research
  • Health Equity / organization & administration*
  • Humans
  • Los Angeles
  • Mental Health / standards*
  • New Orleans
  • Patient Outcome Assessment
  • Quality Improvement
  • Social Determinants of Health / standards*