Family-centred health care for children with cerebral palsy

Dev Med Child Neurol. 2019 Jan;61(1):62-68. doi: 10.1111/dmcn.14053. Epub 2018 Oct 7.


Aim: To identify characteristics of young children with cerebral palsy (CP), and intrinsic and extrinsic factors, that may be associated with parental perceptions regarding family-centred health care services.

Method: We conducted a cross-sectional study, drawing our sample from the Canadian Cerebral Palsy Registry (CCPR). Parents rated the extent of family-centred care provided by their child's health care teams using the 56-item Measures of Process of Care (MPOC) questionnaire. Environmental and CP phenotypic variables were extracted from the CCPR for group comparisons. Low and high MPOC-56 raters were also compared.

Results: Valid responses were obtained from 282 families (90%). All MPOC-56 subscales were highly rated (median ≥6.0), indicating satisfaction with health care services, with the exception of the Providing General Information subscale (median 4.8, interquartile range 3.2-6.0). Parents from Nova Scotia rated all subscales significantly higher than parents from other regions. CP subtype and severity were not significantly associated with MPOC-56 subscale scores. Higher socio-economic status was associated with lower MPOC-56 subscale scores. Higher paternal educational attainment and household income were significantly associated with lower scores on the Providing General Information and Providing Specific Information about the Child subscales respectively.

Interpretation: Participants affirmed the provision of family-centred services from Canadian pediatric rehabilitation centres. Sociodemographic factors were associated with parental perceptions of family-centred services.

What this paper adds: Sociodemographic factors were associated with parental perceptions of family-centred care. Factors intrinsic to the child's cerebral palsy were not associated with parental perceptions.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Canada
  • Cerebral Palsy / rehabilitation*
  • Child Health Services*
  • Child, Preschool
  • Cross-Sectional Studies
  • Disabled Children / rehabilitation
  • Female
  • Health Communication
  • Humans
  • Male
  • Parents / psychology*
  • Patient Care Team
  • Patient Satisfaction
  • Patient-Centered Care
  • Registries
  • Rehabilitation Centers
  • Severity of Illness Index
  • Socioeconomic Factors
  • Surveys and Questionnaires