We aimed to compare salient characteristics and antecedents of quality of life (QOL) in adolescents and young adults with implantable cardioverter-defibrillators (ICDs) from qualitative methods with quantitative measurement of QOL and correlations between QOL (PedsQL) and measured participant characteristics. Concurrent parallel mixed methods design was used to collect survey data from the PedsQL electronic health record, demographic questionnaire, and semistructured interview data. A convenience sample of 16 individuals with ICDs, aged 13 to 25 years, was obtained from a tertiary pediatric facility. Overall QOL and subdomains of physical, psychosocial, and academic/work were examined by PedsQL and visual analog scale. Select demographics were collected to develop a participant profile. Females with ICDs appear to be at risk of poor QOL given some unknown factors. Financial status of the individual and the family was positively related to QOL. For new ICD persons involved in physical activities that must be stopped, peer support appears to improve QOL.
Keywords: adolescent; cardiac disease; implantable cardioverter–defibrillator; mixed methods; young adult.
Quality of life in pediatric patients with implantable cardioverter defibrillators.Am J Cardiol. 2011 Apr 1;107(7):1023-7. doi: 10.1016/j.amjcard.2010.11.027. Epub 2011 Jan 20. Am J Cardiol. 2011. PMID: 21256464
Quality of life and psychological status of patients with implantable cardioverter defibrillators.J Interv Card Electrophysiol. 2006 Oct;17(1):65-72. doi: 10.1007/s10840-006-9053-1. Epub 2007 Jan 18. J Interv Card Electrophysiol. 2006. PMID: 17235681
A review of the evidence on the effects and costs of implantable cardioverter defibrillator therapy in different patient groups, and modelling of cost-effectiveness and cost-utility for these groups in a UK context.Health Technol Assess. 2006 Aug;10(27):iii-iv, ix-xi, 1-164. doi: 10.3310/hta10270. Health Technol Assess. 2006. PMID: 16904046 Review.
Implantable cardioverter defibrillators. Prophylactic use: an evidence-based analysis.Ont Health Technol Assess Ser. 2005;5(14):1-74. Epub 2005 Sep 1. Ont Health Technol Assess Ser. 2005. PMID: 23074465 Free PMC article.
Quality of Life in Patients with an Implantable Cardioverter Defibrillator: A Systematic Review.Front Cardiovasc Med. 2015 Nov 3;2:34. doi: 10.3389/fcvm.2015.00034. eCollection 2015. Front Cardiovasc Med. 2015. PMID: 26664905 Free PMC article. Review.