Aim: The aim of this study was to test the impact of resilience on the health-related quality of life among adolescents with a chronic health problem, we established a structural model to explain patients' health-related quality of life.
Background: There are various resilience-related factors with major effects on the health-related quality of life among adolescents with a chronic disease; however, little is known about relationships among resilience, these influencing factors and direct and indirect effects of health-related quality of life among adolescents with a chronic health problem.
Design: This study adopted a cross-sectional, descriptive correlational design.
Methods: Participants were 220 adolescents with a chronic disease who were aged between 10 and 18 years and currently receiving treatment at a hospital or clinic for least 6 months from February to October 2017 in Korea.
Results: This study verifies that hope and courageous coping had direct effects on the resilience of adolescents with a chronic health problem and the level of direct effects on health-related quality of life was in the following order: hope, resilience and courageous coping. In addition, illness-related distress, social support, hope and defensive coping had indirect effects on resilience and the level of indirect effects on health-related quality of life was in the following order: illness-related distress, social support, defensive coping, hope and courageous coping.
Conclusion: Resilience is a major factor that improves health-related quality of life among adolescents with a chronic health problem. In consideration of the direct and indirect paths verified through this study, it is necessary to develop interventions to improve health-related quality of life among adolescents with a chronic health problem.
目的: 本研究的目的是测试复原力对有慢性健康问题的青少年健康相关生活质量的影响。我们建立了一个结构模型来解释患者健康相关生活质量。 背景: 存在各种与青少年复原能力相关的因素对患有慢性病的青少年健康相关的生活质量具有重大影响;然而,对于换有慢性健康问题的青少年适应能力、相关影响因素以及有关健康生活质量的直接影响和间接影响之间的关系还知之甚少。 设计: 本研究的设计符合客观性、描述性原则。 方法: 受试者为220名患有慢性病的青少年,年龄在10至18岁之间,目前在韩国的医院或诊所接受治疗至少6个月。 结果: 该研究证实,怀有希望与勇气直接影响患有慢性健康问题的青少年的复原力,而对健康相关生活质量的直接影响程度依次为:希望、复原力和勇敢的应对方式。此外,与疾病相关的失落情绪、社会支持、希望和防备心理对复原力有间接影响,对健康相关生活质量的间接影响程度依次为:与疾病相关的失落情绪、社会支持、防备心理、希望和勇敢的应对方式。 结论: 复原力是改善慢性健康问题青少年健康相关生活质量的主要因素。考虑到经过该研究验证的直接和间接途径,有必要制定干预措施来改善患有慢性健康问题的青少年与健康相关的生活质量.
Keywords: adolescent health; chronic disease; health-related quality of life; nursing; resilience.
© 2018 John Wiley & Sons Ltd.