Monitoring the Control of Sexually Transmissible Infections and Blood-Borne Viruses: Protocol for the Australian Collaboration for Coordinated Enhanced Sentinel Surveillance (ACCESS)

Denton Callander; Clarissa Moreira; Carol El-Hayek; Jason Asselin; Caroline van Gemert; Lucy Watchirs Smith; Long Nguyen; Wayne Dimech; Douglas Ir Boyle; Basil Donovan; Mark Stoové; Margaret Hellard; Rebecca Guy

doi:10.2196/11028

Monitoring the Control of Sexually Transmissible Infections and Blood-Borne Viruses: Protocol for the Australian Collaboration for Coordinated Enhanced Sentinel Surveillance (ACCESS)

JMIR Res Protoc. 2018 Nov 20;7(11):e11028. doi: 10.2196/11028.

Authors

Denton Callander^#¹, Clarissa Moreira^#², Carol El-Hayek^{2

3}, Jason Asselin², Caroline van Gemert^{2

3}, Lucy Watchirs Smith¹, Long Nguyen², Wayne Dimech⁴, Douglas Ir Boyle⁵, Basil Donovan^{1

6}, Mark Stoové^{2

3}, Margaret Hellard^#^{2

3}, Rebecca Guy^#¹

Affiliations

¹ Kirby Institute, University of New South Wales Sydney, Sydney, Australia.
² Burnet Institute, Melbourne, Australia.
³ School of Public Health and Preventative Medicine, Monash University, Melbourne, Australia.
⁴ National Reference Laboratory, Melbourne, Australia.
⁵ Research Information Technology Unit, Health and Biomedical Information Centre, Department of General Practice, University of Melbourne, Melbourne, Australia.
⁶ Sydney Sexual Health Centre, Sydney Hospital, Sydney, Australia.

^# Contributed equally.

PMID: 30459142
PMCID: PMC6280029
DOI: 10.2196/11028

Abstract

Background: New biomedical prevention interventions make the control or elimination of some blood-borne viruses (BBVs) and sexually transmissible infections (STIs) increasingly feasible. In response, the World Health Organization and governments around the world have established elimination targets and associated timelines. To monitor progress toward such targets, enhanced systems of data collection are required. This paper describes the Australian Collaboration for Coordinated Enhanced Sentinel Surveillance (ACCESS).

Objective: This study aims to establish a national surveillance network designed to monitor public health outcomes and evaluate the impact of strategies aimed at controlling BBVs and STIs.

Methods: ACCESS is a sentinel surveillance system comprising health services (sexual health clinics, general practice clinics, drug and alcohol services, community-led testing services, and hospital outpatient clinics) and pathology laboratories in each of Australia's 8 states and territories. Scoping was undertaken in each jurisdiction to identify sites that provide a significant volume of testing or management of BBVs or STIs or to see populations with particular risks for these infections ("priority populations"). Nationally, we identified 115 health services and 24 pathology laboratories as relevant to BBVs or STIs; purposive sampling was undertaken. As of March 2018, we had recruited 92.0% (104/113) of health services and 71% (17/24) of laboratories among those identified as relevant to ACCESS. ACCESS is based on the regular and automated extraction of deidentified patient data using specialized software called GRHANITE, which creates an anonymous unique identifier from patient details. This identifier allows anonymous linkage between and within participating sites, creating a national cohort to facilitate epidemiological monitoring and the evaluation of clinical and public health interventions.

Results: Between 2009 and 2017, 1,171,658 individual patients attended a health service participating in ACCESS network comprising 7,992,241 consultations. Regarding those with unique BBV and STI-related health needs, ACCESS captured data on 366,441 young heterosexuals, 96,985 gay and bisexual men, and 21,598 people living with HIV.

Conclusions: ACCESS is a unique system with the ability to track efforts to control STIs and BBVs-including through the calculation of powerful epidemiological indicators-by identifying response gaps and facilitating the evaluation of programs and interventions. By anonymously linking patients between and within services and over time, ACCESS has exciting potential as a research and evaluation platform. Establishing a national health surveillance system requires close partnerships across the research, government, community, health, and technology sectors.

International registered report identifier (irrid): DERR1-10.2196/11028.

Keywords: Australia; blood-borne viruses; public health; sentinel surveillance; sexually transmissible infections.

©Denton Callander, Clarissa Moreira, Carol El-Hayek, Jason Asselin, Caroline van Gemert, Lucy Watchirs Smith, Long Nguyen, Wayne Dimech, Douglas IR Boyle, Basil Donovan, Mark Stoové, Margaret Hellard, Rebecca Guy. Originally published in JMIR Research Protocols (http://www.researchprotocols.org), 20.11.2018.