Perinatal bereavement and palliative care offered throughout the healthcare system

Ann Palliat Med. 2019 Feb;8(Suppl 1):S22-S29. doi: 10.21037/apm.2018.11.03. Epub 2018 Nov 22.

Abstract

The aims of this article are twofold: (I) provide a general overview of perinatal bereavement services throughout the healthcare system and (II) identify future opportunities to improve bereavement services, including providing resources for the creation of standardized care guidelines, policies and educational opportunities across the healthcare system. Commentary is provided related to maternal child services, the neonatal intensive care unit (NICU), prenatal clinics, operating room (OR) and perioperative services, emergency department (ED), ethics, chaplaincy and palliative care services. An integrated system of care increases quality and safety and contributes to patient satisfaction. Physicians, nurses and administrators must encourage pregnancy loss support so that regardless of where in the facility the contact is made, when in the pregnancy the loss occurs, or whatever the conditions contributing to the pregnancy ending, trained caregivers are there to provide bereavement support for the family and palliative symptom management to the fetus born with a life limiting condition. The goal for respectful caregiving throughout an entire hospital system is achievable and critically important.

Keywords: Palliative care; antenatal palliative care; hospital system; perinatal palliative care (PPC).

Publication types

  • Review

MeSH terms

  • Abortion, Spontaneous / psychology
  • Ambulatory Care / organization & administration
  • Bereavement*
  • Chaplaincy Service, Hospital / statistics & numerical data
  • Delivery of Health Care, Integrated / organization & administration*
  • Ethics Committees, Clinical / statistics & numerical data
  • Fetal Death
  • Hospice Care / organization & administration
  • Humans
  • Intensive Care, Neonatal / organization & administration
  • Palliative Care / organization & administration*
  • Patient Care Team / organization & administration
  • Perinatal Care / organization & administration
  • Prenatal Care / organization & administration
  • Professional-Family Relations
  • Social Support