Genetic Service Delivery Models: Exploring Approaches to Care for Families With Hereditary Cancer Risk

Clin J Oncol Nurs. 2019 Feb 1;23(1):60-67. doi: 10.1188/19.CJON.60-67.

Abstract

Background: Providing timely access to quality genetic counseling is becoming necessary as the awareness and availability of high-risk screening and genetic testing increase. The results of genetic testing directly influence treatment decisions and recommendations for cancer screening and prevention. Evolving service delivery models of genetic counseling can lessen patient and system barriers to comprehensive genetic care.

Objectives: The aim of this article is to note known barriers to accessing genetic care, review strategies and delivery models to enhance access to the genetic counseling process, and discuss how oncology nurses can play a supportive role in facilitating the genetic counseling process.

Methods: A review of the literature was conducted using PubMed, CINAHL®, and Ovid.

Findings: Alternative service delivery models can increase the accessibility of genetic counseling services to at-risk populations. Additional research is needed to identify the models that can balance improved access to care with effective counseling.

Keywords: genetic counseling; hereditary cancer syndromes; service delivery models; telegenetics.

Publication types

  • Review

MeSH terms

  • Adult
  • Aged
  • Aged, 80 and over
  • Curriculum
  • Education, Nursing, Continuing
  • Family / psychology*
  • Female
  • Genetic Counseling / methods*
  • Genetic Predisposition to Disease / psychology*
  • Genetic Testing / methods*
  • Humans
  • Male
  • Mass Screening / methods*
  • Middle Aged
  • Patient Education as Topic / methods*
  • Risk Assessment / methods*