Comprehensive pulmonary rehabilitation for interstitial lung disease: A consensus approach to identify core education topics

Anne E Holland; Alice Watson; Ian Glaspole

doi:10.1016/j.pec.2019.01.010

Comprehensive pulmonary rehabilitation for interstitial lung disease: A consensus approach to identify core education topics

Patient Educ Couns. 2019 Jun;102(6):1125-1130. doi: 10.1016/j.pec.2019.01.010. Epub 2019 Jan 16.

Authors

Anne E Holland¹, Alice Watson², Ian Glaspole³

Affiliations

¹ Department of Physiotherapy, Alfred Health, Melbourne, Australia; Discipline of Physiotherapy, La Trobe University, Melbourne, Australia; Institute for Breathing and Sleep, Melbourne, Australia. Electronic address: a.holland@alfred.or.gau.
² Discipline of Physiotherapy, La Trobe University, Melbourne, Australia.
³ Department of Medicine, Monash University, Melbourne, Australia; Department of Respiratory and Sleep Medicine, Alfred Health, Melbourne, Australia.

PMID: 30683609
DOI: 10.1016/j.pec.2019.01.010

Abstract

Objective: To achieve consensus amongst health professionals and people with interstitial lung disease (ILD) on core educational topics for pulmonary rehabilitation (PR) in ILD.

Methods: Health professionals with expertise in ILD and/or PR took part in a 2-round online Delphi process. Potential educational topics for PR were rated on a 4-point Likert scale with anchors of 'completely unimportant' and 'very important'. Results of each Delphi round were discussed and refined by focus groups of people with ILD, to achieve final approval of topics.

Results: Health professional participants (n = 43) represented six disciplines from five continents. Focus group participants (n = 10) had a range of ILDs and disease severity. Consensus was reached on six core education topics: (1) Staying well with ILD; (2) Keeping fit and strong after PR; (3) Oxygen Therapy; (4) Managing breathlessness and cough; (5) Overcoming fatigue; (6) Managing anxiety, depression and panic.

Conclusion: This study has identified core educational topics for people with ILD who undertake PR, incorporating the perspectives of both patients and health professionals. This is a step towards comprehensive PR for people with ILD.

Practice implications: This study provides PR clinicians with guidance on ILD-specific education topics that can be delivered in existing PR programs.

Keywords: Education of patients; Interstitial; Lung diseases.

Publication types

Multicenter Study
Research Support, Non-U.S. Gov't

MeSH terms

Consensus
Delphi Technique
Focus Groups
Humans
Lung Diseases, Interstitial / rehabilitation*
Patient Education as Topic*