Transitions from child to adult health care for young people with intellectual disabilities: A systematic review

J Adv Nurs. 2019 Nov;75(11):2418-2434. doi: 10.1111/jan.13985. Epub 2019 Apr 29.

Abstract

Aims: To examine the experiences of health transitions for young people with intellectual disabilities and their carers and identify the implications for nursing practice.

Design: A systematic review and critical appraisal of qualitative, quantitative, and mixed methods studies.

Data sources: A search of the relevant literature published 2007-2017 was carried out in AMED, ASSIA, CINAHL, MEDLINE, PsycINFO, PubMed, and Science Direct Sociological Abstracts databases.

Review methods: A total of 12 of 637 papers identified in the search met the inclusion criteria for this review. A narrative review of the papers was undertaken by synthesizing the key findings and grouping them into concepts and emergent themes.

Results: Four main themes were identified: (a) becoming an adult; (b) fragmented transition process and care; (c) parents as advocates in emotional turmoil; and (d) making transitions happen.

Conclusion: The range of issues that have an impact on the transition from child to adult health services for young people with intellectual disabilities and their carers raise important implications for policy development, nursing practice, and education.

目的: 在于检查智障青少年及其护理人员的健康转变经历,并确定护理实践的含义。 设计: 对定性、定量和混合方法性研究的系统综述和严格评价。 资料来源: 在AMED、ASSIA、CINAHL、MEDLINE、PsycINFO、PubMed和Science Direct Sociological Abstract数据库中搜索了2007至2017年间发表的相关文献。 综述方法: 在搜索中确定的637篇论文中,共有12篇符合本次综述的入选标准。对论文的叙述性综述是通过综合 主要调查结果并将其分为各种理念和新兴主题进行的。 结果: 确定了四大主题:(a)成为成年人;(b)支离破碎的转变过程和护理;(c)父母是情绪混乱的倡导者;以及(d)实现转变。 结论: 影响智障青少年及其护理人员从儿童保健服务向成人保健服务转变的一系列问题对政策演变、护理实践和教育产生了重要影响。.

Keywords: complex needs; health services; intellectual disabilities; nursing; systematic review; transitions; young people.

Publication types

  • Review
  • Systematic Review

MeSH terms

  • Adult
  • Child
  • Continuity of Patient Care*
  • Humans
  • Intellectual Disability / nursing*
  • Young Adult

Grants and funding