Recommendations and Challenges of the Clinical Services Panel of the PhenX Early Psychosis Working Group

Psychiatr Serv. 2019 Jun 1;70(6):514-517. doi: 10.1176/ Epub 2019 Apr 10.


Coordinated specialty care (CSC) is a promising multielement treatment for the care of individuals experiencing the onset of schizophrenia. The community mental health block grant program has increased federal support for CSC programs. In order to maximize the number of sites capable of science-to-service or service-to-science translation, the National Institute of Mental Health funded a supplement to the PhenX toolkit consisting of measures for early psychosis. The early psychosis working group included translational research and clinical services panels. The clinical services panel was charged with identifying low-burden and psychometrically sound measures for use in routine clinical settings. The 19 new clinical measures complement existing measures already in the toolkit. Measures cover a range of domains, including symptoms, social and occupational functioning, well-being, medication adherence and side effects, physical activity, and shared decision making and person-centered care. Several challenges are also discussed. The review process underscored the challenges facing nonacademic sites in collecting even low-burden assessments.

Keywords: Scales/outcome & clinical measurement, Schizophrenia, outcomes.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Early Medical Intervention / economics
  • Early Medical Intervention / methods*
  • Humans
  • National Institute of Mental Health (U.S.)
  • Program Development
  • Schizophrenia / therapy*
  • Software*
  • United States