PaTH to partnership in stakeholder-engaged research: A framework for stakeholder engagement in the PaTH to Health Diabetes study

Healthc (Amst). 2020 Mar;8(1):100361. doi: 10.1016/j.hjdsi.2019.05.001. Epub 2019 May 14.

Abstract

Engaging a diverse stakeholder group, including patients, clinicians, policy makers, and leadership from national professional organizations as partners in research supports the pursuit of patient-centered outcomes. Utilizing the Patient-Centered Outcomes Research (PCOR) Engagement Principles and applying adult learning theories to training opportunities can enhance stakeholder-investigator collaborations. Regularly scheduled study meetings with stakeholders can help streamline communication, offer a platform for stakeholder voices to be shared, and increase study productivity. Ongoing engagement evaluations provide an important opportunity to assess engagement activities and improve processes moving forward. Benefits of a robust patient partner and stakeholder body extend beyond the study's objectives and translate into the creation of larger networks where resources are shared and patient-centeredness is enhanced.

Keywords: Community engagement; Diabetes; Patient partners; Patient-centered research; Stakeholder-engaged research.

Publication types

  • Case Reports

MeSH terms

  • Diabetes Mellitus / therapy*
  • Health Policy*
  • Humans
  • Research / trends
  • Stakeholder Participation / psychology*