Care preferences of healthy, middle-aged adults in Japan and the USA if they acquired dementia: A cross-sectional observational study

Geriatr Gerontol Int. 2019 Aug;19(8):829-833. doi: 10.1111/ggi.13729. Epub 2019 Jul 7.

Abstract

Aim: Japan introduced dementia-friendly initiatives into its national policies to help people with dementia remain involved in society for as long as possible. However, some people might choose to live in a nursing home to avoid care burden on family members. Understanding middle-aged adults' preferences for place of care and identifying factors that influence their preferences would help policy decision-makers promote dementia-friendly initiatives. The present study aimed to investigate the care preferences of middle-aged adults if they acquired dementia in Japan and the USA.

Methods: We carried out a cross-sectional observational study using an internet-based questionnaire survey of Japanese residents with Japanese ethnicity, Japanese Americans, and non-Asian Americans aged 40-70 years. A total of 301 participants, including 104 Japanese residents, 93 Japanese Americans and 104 non-Asian Americans, completed the survey. Participants were asked to answer the items based on a hypothetical situation in which they had acquired dementia requiring regular care and supervision.

Results: Participants preferred nursing home care (29.9%), followed by professional home care (19.6%), family home care (17.6%) and hospital care (11.3%). Japanese residents had a significantly lower preference for professional home care than did Japanese or non-Asian Americans (adjusted odds ratio 0.28, 95% confidence interval 0.10-0.75). Between-ethnicity difference in care preferences was not observed.

Conclusions: A low preference for professional home care among the middle-aged adults might be influenced by country-specific long-term and dementia care systems. Policy decision-makers should develop professional home care services that are more available for families of people living with dementia. Geriatr Gerontol Int 2019; 19: 829-833.

Keywords: community care; cross-cultural comparison; dementia; healthcare policy; long-term care.

Publication types

  • Observational Study

MeSH terms

  • Aged
  • Asian / psychology
  • Asian / statistics & numerical data
  • Asian People / psychology
  • Asian People / statistics & numerical data
  • Cross-Cultural Comparison
  • Cross-Sectional Studies
  • Dementia* / ethnology
  • Dementia* / psychology
  • Female
  • Home Care Services*
  • Humans
  • Independent Living / psychology
  • Independent Living / statistics & numerical data
  • Japan / epidemiology
  • Male
  • Middle Aged
  • Needs Assessment
  • Patient Preference* / ethnology
  • Patient Preference* / statistics & numerical data
  • Skilled Nursing Facilities*
  • United States / epidemiology