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. 2019 Aug 8;19(1):174.
doi: 10.1186/s12886-019-1191-1.

Low Health Literacy Levels in Patients With Chronic Retinal Disease

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Free PMC article

Low Health Literacy Levels in Patients With Chronic Retinal Disease

Sofie Jandorf et al. BMC Ophthalmol. .
Free PMC article

Abstract

Background: A patient's health literacy is fundamental for navigating the health system and managing disease. This study aimed to compare the health literacy levels of patients with chronic retinal disease in Denmark.

Methods: This cross-sectional questionnaire study used the validated HLS-EU-Q16 questionnaire to determine the health literacy of 225 patients with age-related macular degeneration (AMD), diabetic macular edema (DME) or retinal vein occlusion (RVO), receiving intravitreal treatment at the retinal clinic, Zealand University Hospital, Denmark. Patients were consecutively included as participants for the study. All patients had the option of having the survey read aloud to them.

Results: Health literacy levels between the patient groups did not differ significantly, however, the proportion of patients with poor health literacy was high-65% of AMD patients, 73% of DME patients, and 63% of patients with RVO.

Conclusions: Low health literacy of patients with retinal disease signify a need for more health literacy research in the field of retinal diseases, to secure that patients have the timely and appropriate knowledge and competencies to manage their condition.

Keywords: Age-related macular degeneration; Diabetic macular edema; Health literacy; Retinal vein occlusion.

Conflict of interest statement

All authors declare that they have no potential conflicts of interests.

Figures

Fig. 1
Fig. 1
The majority of patients with age-related macular degeneration (A), diabetic macular edema (B), or retinal vein occlusion (C) had problematic or inadequate health literacy level

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