Models of care for adolescent and young adult cancer programs

Pediatr Blood Cancer. 2019 Dec;66(12):e27991. doi: 10.1002/pbc.27991. Epub 2019 Sep 16.


This review draws on the experience of adolescent and young adult (AYA) cancer clinicians from Australia, the United States, and the United Kingdom to summarize common aspects of models of care implemented in their countries. The principles underpinning these models include patient- and family-focused care informed by an understanding of normal AYA development, enhancing existing adult or pediatric cancer services to meet the needs of AYA, and promoting collaboration between pediatric and adult oncologists. Common elements of AYA cancer care include establishing an AYA multidisciplinary team that integrates medical and psychosocial care, efforts to centralize complex care, providing access and equity for all AYA, promoting clinical trials, and helping facilitate transition to healthy survivorship. Several organizational approaches are described, noting that local program development depends on resources, infrastructure, and assessment of unmet needs within the region. The development of national networks provides opportunities for shared learning and approaches to evaluation.

Keywords: adolescents and young adults; clinical care; models of care.

Publication types

  • Review

MeSH terms

  • Adolescent
  • Adult
  • Aftercare / standards*
  • Cancer Survivors / statistics & numerical data*
  • Delivery of Health Care, Integrated / standards*
  • Humans
  • Models, Statistical*
  • Neoplasms / mortality
  • Neoplasms / therapy*
  • Practice Guidelines as Topic / standards*
  • Prognosis
  • Quality Assurance, Health Care / standards*
  • Survival Rate
  • Young Adult