Amyotrophic lateral sclerosis is a serious neuro-degenerative disease related to involvement of central motor neurons (cerebral cortex) and peripheral neurons (anterior horn of the spinal cord and motor nuclei of the medulla). Clinical progression is marked by extensive paralysis leading to death, most frequently by respiratory failure. Specific nursing care is required at each stage of the illness.
Keywords: accompagnement fin de vie; amyotrophic lateral sclerosis; end-of-life care; multidisciplinarity; neuropsychopathologie; neuropsychopathology; pluridisciplinarité; sclérose latérale amyotrophique; therapeutic education; éducation thérapeutique.
Copyright © 2019. Publié par Elsevier Masson SAS.