Facilitators of research registry enrollment and potential variation by race and gender

J Clin Transl Sci. 2018 Nov 27;2(4):234-238. doi: 10.1017/cts.2018.326. eCollection 2018 Aug.

Abstract

Introduction: Little is known about what motivates people to enroll in research registries. The purpose of this study is to identify facilitators of registry enrollment among diverse older adults.

Methods: Participants completed an 18-item Research Interest Assessment Tool. We used logistic regression analyses to examine responses across participants and by race and gender.

Results: Participants (N=374) were 58% black, 76% women, with a mean age of 68.2 years. All participants were motivated to maintain their memory while aging. Facilitators of registry enrolled varied by both race and gender. Notably, blacks (estimate=0.71, p<0.0001) and women (estimate=0.32, p=0.03) were more willing to enroll in the registry due to home visits compared with whites and men, respectively.

Conclusions: Researchers must consider participant desire for maintaining memory while aging and home visits when designing culturally tailored registries.

Keywords: Research registries; cognitive health; health equity; older adults.