Skip to main page content
Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
, 6 (1), e000478

Patient Experience of COPD Care: Outcomes From the British Lung Foundation Patient Passport


Patient Experience of COPD Care: Outcomes From the British Lung Foundation Patient Passport

Keir Philip et al. BMJ Open Respir Res.


Introduction: The British Lung Foundation (BLF) COPD Patient Passport ( was developed as a resource to help people with chronic obstructive pulmonary disease (COPD) and clinicians to consider the care received and identify essential omissions. We used the online data collected to evaluate the delivery of COPD care in the UK from a patient perspective.

Methods: The patient passport consists of 13 questions relating to key aspects of COPD care including: spirometry confirmation of diagnosis, understanding their diagnosis, support and a written management plan, vaccinations, smoking cessation, physical activity, exercise, eating well, pulmonary rehabilitation, exacerbations, medications and yearly reviews. Data were presented as proportions with an answer corresponding to good care, and plotted over time to identify trends.

Results: After removing identifiable duplicates, data from 41 769 entries, completed online between November 2014 and April 2019, remained (table 1). Twenty-four per cent reported getting support to manage their care and a written action plan; 53% could spot the signs of an acute exacerbation; 34% had discussed pulmonary rehabilitation and 41% stated they understood their COPD, and their doctor or nurse had explained where to find information, advice and emotional support. A quarter reported not receiving influenza vaccination and a third of those who smoke were not offered support to quit smoking. Even the strongest areas including spirometry-confirmed diagnosis, and knowing the importance of being active and eating well, achieved only around 80%. Response patterns remained stable or worsened over time.

Discussion: Responses to the BLF COPD Patient Passport identify substantial gaps in patients' experience of care, which did not appear to improve during the 5 years covered. These data provide a unique yet commonly overlooked perspective on care quality, and highlight that new approaches will be needed to meet the ambitions to improve respiratory care set out in the NHS Long Term Plan.

Keywords: COPD; quality of care.

Conflict of interest statement

Competing interests: None declared.

Similar articles

See all similar articles

Cited by 1 article


    1. National Institute for Clinical Excellence Chronic obstructive pulmonary disease in over 16S: diagnosis and management, 2018. Available: https://wwwniceorguk/guidance/ng115
    1. Hopkinson NS, Molyneux A, Pink J, et al. Chronic obstructive pulmonary disease: diagnosis and management: summary of updated NICE guidance. BMJ 2019;366 10.1136/bmj.l4486 - DOI - PubMed
    1. NHS England QOF database: chronic obstructive pulmonary disease, 2018. Available:
    1. Hurst JMV, Mortier K, Shanahan L, Moussaif M, Adamson A, Stone P, Quint J, Roberts CM. National asthma and chronic obstructive pulmonary disease audit programme (NACAP). COPD clinical audit 2017/18 (people with COPD exacerbations discharged from acute hospitals in England and Wales between September 2017 and 2018) clinical audit report. London: Royal College of Physicians; 2019.
    1. Hodson M, Roberts CM, Andrew S, et al. Development and first validation of a patient-reported experience measure in chronic obstructive pulmonary disease (PREM-C9). Thorax 2019;74:600–3. 10.1136/thoraxjnl-2018-211732 - DOI - PubMed

Publication types