Changing the Conversation about The Ethics of Genomics and Health Disparities Research with American Indian and Alaska Native Communities: A Report from the Field

J Health Care Poor Underserved. 2019;30(4S):21-26. doi: 10.1353/hpu.2019.0111.

Abstract

"Changing the conversation" around genomic research with U.S. tribal communities may lead to new pathways to address persistent health disparities. Restoring trustworthiness between researchers and communities entails a willingness to listen to Indigenous voices, being flexible, and refining existing policies and frameworks to adapt to communities' needs.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Alaska Natives / genetics*
  • Community Participation / methods
  • Cultural Competency
  • Environment
  • Ethics Committees, Research / organization & administration
  • Ethics, Research
  • Genomics / ethics*
  • Genomics / methods*
  • Health Status Disparities*
  • Humans
  • Indians, North American / genetics*
  • Leadership
  • United States