Responsibility and the limits of patient choice

Bioethics. 2020 Jun;34(5):459-466. doi: 10.1111/bioe.12693. Epub 2019 Nov 26.

Abstract

Patients are generally assumed to have the right to choices about treatment, including the right to refuse treatment, which is constrained by considerations of cost-effectiveness. Independently, many people support the idea that patients who are responsible for their ill health should incur penalties that non-responsible patients do not face. Surprisingly, these two areas have not received much joint attention. This paper considers whether restricting the scope of responsibility to pre-treatment decisions can be justified, or whether a demand to hold people responsible for 'usual suspect' choices such as smoking or failure to exercise commits us to also holding people responsible for their treatment choices. I argue that there is no good reason to support this restriction: those who advocate responsibility for (some) pre-treatment choices should also advocate responsibility for (some) treatment choices. However, I also note that, as with pre-treatment choices, patients may sometimes have reason to choose in ways that do not optimize their health. As such, I also consider a process, based on the idea of public reasons, for deciding which treatment choices patients cannot legitimately be held responsible for, along with a method for considering proposed changes to this category.

Keywords: choice; healthcare; public reasons; responsibility.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Choice Behavior*
  • Decision Making*
  • Delivery of Health Care / ethics
  • Health Behavior*
  • Humans
  • Patient Preference*
  • Patient Selection*
  • Social Responsibility*
  • Standard of Care
  • Treatment Refusal