Philosophy of care delivery for spina bifida

doi:10.1016/j.dhjo.2019.100883

. 2020 Apr;13(2):100883.

doi: 10.1016/j.dhjo.2019.100883. Epub 2019 Dec 20.

Philosophy of care delivery for spina bifida

Judy Thibadeau¹, William O Walker Jr², Jonathan Castillo³, Brad E Dicianno⁴, Jonathan C Routh⁵, Kathryn A Smith⁶, Lijing Ouyang⁷

Affiliations

¹ Spina Bifida Association, 1600 Wilson Blvd., Suite 800, Arlington, VA, 22209, USA. Electronic address: jthibadeau@sbaa.org.
² Chief, Division of Developmental Medicine, Seattle Children's Hospital, Robert A. Aldrich Professor, Department of Pediatrics, University of Washington School of Medicine, USA.
³ Developmental-Behavioral Pediatrics, Texas Children's Hospital, Baylor College of Medicine, USA.
⁴ University of Pittsburgh School of Medicine, Department of Physical Medicine and Rehabilitation, Pittsburgh, PA, USA; Human Engineering Research Laboratories, VA Pittsburgh Healthcare System, Pittsburgh, PA, USA.
⁵ Duke University School of Medicine, USA.
⁶ USC University Center for Excellence in Developmental Disabilities, Spina Bifida Program, Children's Hospital Los Angeles, Clinical Pediatrics, Keck School of Medicine, University of Southern California, USA.
⁷ National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, USA.

PMID: 31928964
PMCID: PMC7477785
DOI: 10.1016/j.dhjo.2019.100883

Philosophy of care delivery for spina bifida

Judy Thibadeau et al. Disabil Health J. 2020 Apr.

. 2020 Apr;13(2):100883.

doi: 10.1016/j.dhjo.2019.100883. Epub 2019 Dec 20.

Authors

Judy Thibadeau¹, William O Walker Jr², Jonathan Castillo³, Brad E Dicianno⁴, Jonathan C Routh⁵, Kathryn A Smith⁶, Lijing Ouyang⁷

Affiliations

¹ Spina Bifida Association, 1600 Wilson Blvd., Suite 800, Arlington, VA, 22209, USA. Electronic address: jthibadeau@sbaa.org.
² Chief, Division of Developmental Medicine, Seattle Children's Hospital, Robert A. Aldrich Professor, Department of Pediatrics, University of Washington School of Medicine, USA.
³ Developmental-Behavioral Pediatrics, Texas Children's Hospital, Baylor College of Medicine, USA.
⁴ University of Pittsburgh School of Medicine, Department of Physical Medicine and Rehabilitation, Pittsburgh, PA, USA; Human Engineering Research Laboratories, VA Pittsburgh Healthcare System, Pittsburgh, PA, USA.
⁵ Duke University School of Medicine, USA.
⁶ USC University Center for Excellence in Developmental Disabilities, Spina Bifida Program, Children's Hospital Los Angeles, Clinical Pediatrics, Keck School of Medicine, University of Southern California, USA.
⁷ National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, USA.

PMID: 31928964
PMCID: PMC7477785
DOI: 10.1016/j.dhjo.2019.100883

Abstract

The multidisciplinary model (MCM) is described as one that utilizes skills and experience from practitioners belonging to various disciplines, each treating patients from a specific clinical perspective.¹ The Spina Bifida Association (SBA) supports and recommends that clinical care for people with Spina Bifida (SB) be provided in specialty clinics of which the MCM is an example; that care be coordinated; and that there be a plan for transitional care.² This paper explores the challenges the MCM faces with a transitioning and aging population in a care system that calls for a positive patient experience, engaged health care professionals, desired outcomes, with consideration of cost.

Keywords: Cost and outcomes; Multidisciplinary care model; Spina bifida.

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Conflict of interest statement

Declaration of competing interest The authors have no conflicts of interest.

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References

1. Jessup R Interdisciplinary versus multidisciplinary care teams: do we understand the difference? Aust Health Rev. 2007;31:330–331. - PubMed
1. Liptak G, Samra A. Optimizing healthcare for children with spina bifida. Dev Disabil Res Rev. 2010;16:66–75. - PubMed
1. Bowman R, McLone D, Grant J, et al. Spina bifida outcome: a 25-year prospective. Pediatr Neurosurg. 2001;34:114–120. - PubMed
1. Ouyang L, Grosse S, Armour B, et al. Health care expenditures of children and adults with spina bifida in a privately insured U.S. population. Birth Defects Res (Part A). 2007;79:552–558. - PubMed
1. Alabi N, Thibadeau J, Wiener J, et al. Surgeries and health outcomes among patients with spina bifida. Pediatrics. 2018;142(3):e 20173730. - PMC - PubMed

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[1] Jessup R Interdisciplinary versus multidisciplinary care teams: do we understand the difference? Aust Health Rev. 2007;31:330–331. - PubMed

[2] Jessup R Interdisciplinary versus multidisciplinary care teams: do we understand the difference? Aust Health Rev. 2007;31:330–331. - PubMed

[3] Liptak G, Samra A. Optimizing healthcare for children with spina bifida. Dev Disabil Res Rev. 2010;16:66–75. - PubMed

[4] Liptak G, Samra A. Optimizing healthcare for children with spina bifida. Dev Disabil Res Rev. 2010;16:66–75. - PubMed

[5] Bowman R, McLone D, Grant J, et al. Spina bifida outcome: a 25-year prospective. Pediatr Neurosurg. 2001;34:114–120. - PubMed

[6] Bowman R, McLone D, Grant J, et al. Spina bifida outcome: a 25-year prospective. Pediatr Neurosurg. 2001;34:114–120. - PubMed

[7] Ouyang L, Grosse S, Armour B, et al. Health care expenditures of children and adults with spina bifida in a privately insured U.S. population. Birth Defects Res (Part A). 2007;79:552–558. - PubMed

[8] Ouyang L, Grosse S, Armour B, et al. Health care expenditures of children and adults with spina bifida in a privately insured U.S. population. Birth Defects Res (Part A). 2007;79:552–558. - PubMed

[9] Alabi N, Thibadeau J, Wiener J, et al. Surgeries and health outcomes among patients with spina bifida. Pediatrics. 2018;142(3):e 20173730. - PMC - PubMed

[10] Alabi N, Thibadeau J, Wiener J, et al. Surgeries and health outcomes among patients with spina bifida. Pediatrics. 2018;142(3):e 20173730. - PMC - PubMed

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Philosophy of care delivery for spina bifida

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Philosophy of care delivery for spina bifida

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