Celiac Disease Nutritional Status and Poor Adherence to Follow-up

Clin Pediatr (Phila). 2020 Jun;59(7):649-655. doi: 10.1177/0009922820912216. Epub 2020 Mar 24.


Introduction. Celiac disease, an autoimmune enteropathy, occurs in susceptible individuals and is treatable with a gluten-free diet. These may not be supplemented with vitamins. Objective. To assess the nutritional health of children who have biopsy-proven celiac disease. Methods. Charts were reviewed between July 1, 2007, and June 30, 2017. Results. A total of 252 children ages 0 to 21 years had biopsy-proven celiac disease, mean age 11 ± 4.1 years. Body mass index Z-score was 0.2 ± 1.2 at diagnosis. Except for vitamin D, few had deficiencies at diagnosis. At 1-year follow-up, there was no significant change in anthropomorphics or vitamin status. Adherence to follow-up was poor; at 5 years after diagnosis, 39% adhered to follow-up. Conclusion. Despite a rigorous, proactive protocol for contacting and following children with celiac disease, adherence to follow-up was poor. New strategies, such as follow-up through the primary care provider, are needed.

Keywords: body mass index; celiac disease; folate; nutrition; vitamin.

MeSH terms

  • Adolescent
  • Adult
  • Celiac Disease / epidemiology*
  • Celiac Disease / physiopathology*
  • Child
  • Child, Preschool
  • Female
  • Humans
  • Infant
  • Male
  • Nutritional Status / physiology*
  • Patient Compliance / statistics & numerical data*
  • Young Adult