Nomenclature and semantic descriptions of ulcerative and inflammatory lesions seen in Crohn's disease in small bowel capsule endoscopy: An international Delphi consensus statement

United European Gastroenterol J. 2020 Feb;8(1):99-107. doi: 10.1177/2050640619895864. Epub 2019 Dec 23.

Abstract

Background: In the medical literature, the nomenclature and descriptions (ND) of small bowel (SB) ulcerative and inflammatory (U-I) lesions in capsule endoscopy (CE) are scarce and inconsistent. Inter-observer variability in interpreting these findings remains a major limitation in the assessment of the severity of mucosal lesions, which can impact negatively on clinical care, training and research on SB-CE.

Objective: Focusing on SB-CE in Crohn's disease (CD), our aim is to establish a consensus on the ND of U-I lesions.

Methods: An international panel of experienced SB-CE readers was formed during the 2016 United European Gastroenterology Week meeting. A core group of five CE and inflammatory bowel disease (IBD) experts established an Internet-based, three-round Delphi consensus but did not participate in the voting process. The core group built illustrated questionnaires, including SB-CE still frames of U-I lesions from patients with documented CD. Twenty-seven other experts were asked to rate and comment on the different proposals for the ND of the most frequent SB U-I lesions. For each round, we used a 6-point rating scale (varying from 'strongly disagree' to 'strongly agree'). The consensus was reached when at least 80 % of the voting members scored the statement within the 'agree' or 'strongly agree' categories.

Results: A 100% participation rate was obtained for all the rounds. Consensual ND were reached for the following seven U-I lesions: aphthoid erosion, deep ulceration, superficial ulceration, stenosis, edema, hyperemia and denudation.

Conclusion: Considering the most frequent SB U-I lesions seen in CE in CD, a consensual ND was reached by the international group of experts. These descriptions and names are useful not only for daily practice and medical education, but also for medical research.

Keywords: Capsule endoscopy; Crohn’s disease; Delphi consensus; inflammatory bowel diseases; nomenclature; small-bowel.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Capsule Endoscopy / standards*
  • Consensus
  • Crohn Disease / diagnosis*
  • Crohn Disease / immunology
  • Crohn Disease / pathology
  • Delphi Technique
  • Gastroenterology / standards
  • Humans
  • International Cooperation
  • Intestine, Small / diagnostic imaging*
  • Intestine, Small / immunology
  • Intestine, Small / pathology
  • Observer Variation
  • Semantics
  • Terminology as Topic*