Purpose: Outcome measurements currently used in chronic uveitis care fail to cover the full patient perspective. The aim of this study is to develop a conceptual model of the factors that adult patients with chronic uveitis consider to be important when evaluating the impact of their disease and treatment.
Methods: A qualitative study design was used. Twenty chronic uveitis patients were recruited to participate in two focus groups. Data were transcribed verbatim and analysed using thematic analysis in ATLAS.ti.
Results: Coding of the transcripts resulted in a total of 19 codes divided over five themes: 1) disease symptoms and treatment; 2) diagnosis and treatment process; 3) impact on daily functioning; 4) emotional impact; and 5) treatment success factors.
Conclusion: The conceptual model resulting from this study can contribute to the development of future uveitis specific measures in adults.
Keywords: Ophthalmology (MeSH); Patient reported outcome measures (MeSH); Qualitative research (MeSH); Quality of health care (MeSH); Quality of life (MeSH); Surveys and questionnaires (MeSH); Uveitis (MeSH).