Supporting Newly Identified or Diagnosed Autistic Adults: An Initial Evaluation of an Autistic-Led Programme

J Autism Dev Disord. 2021 Mar;51(3):892-905. doi: 10.1007/s10803-020-04486-4.

Abstract

Sixteen adults (diagnosed or self-identified as autistic) participated in one of two iterations of a ten-week autistic-led programme, aimed at helping autistic adults learn more about autism within a peer group context. Motivations for taking part in the programme included a desire for: (1) exploration of autism; (2) empowerment; and (3) the development of practical strategies and coping mechanisms. Interviews were conducted upon completion of the programme and again 6 months later. Using thematic analysis, three themes were identified: (1) appreciation of the autistic-led nature of the programme; (2) unity in diversity; and (3) developing a positive, practical outlook on autism. These promising initial results highlight the value of autistic-led peer support for those recently diagnosed/identified as autistic.

Keywords: Adults; Autism; Autistic-led; Diagnosis; Peer support; Post-diagnostic support.

Publication types

  • Evaluation Study

MeSH terms

  • Adaptation, Psychological* / physiology
  • Adolescent
  • Adult
  • Aged
  • Autistic Disorder / diagnosis*
  • Autistic Disorder / psychology*
  • Autistic Disorder / therapy
  • Community Health Services / methods
  • Community Health Services / standards*
  • Female
  • Health Knowledge, Attitudes, Practice*
  • Humans
  • Male
  • Middle Aged
  • Motivation / physiology
  • Peer Group*
  • Surveys and Questionnaires