Quality of life in women with endometriosis: a cross-sectional survey

Qual Life Res. 2020 Oct;29(10):2669-2677. doi: 10.1007/s11136-020-02515-4. Epub 2020 Apr 30.


Purpose: The aim of the study was to assess QoL and identify and analyse its determinants in women with endometriosis.

Methods: The study was performed in 2019 in health centres in Lublin (Poland) on 309 women with diagnosed endometriosis. In order to verify which factors affect QoL of the study participants, regression for qualitative variables (CATREG) was used. The applied research instruments included the WHOQOL-BREF quality of life questionnaire, the Acceptance of Illness Scale (AIS), the Laitinen Pain Scale, and a general questionnaire.

Results: The overall QoL score of the respondents was 3.30, whereas their overall perceived health score was 2.37. The highest QoL scores were found for the psychological domain 13.33, whereas the lowest QoL were found for the physical domain 11.52. Women with endometriosis have a moderate level of illness acceptance (24.64) and experience daily pain of moderate intensity (5.83).

Conclusion: Women with endometriosis rate their overall QoL higher than their overall perceived health. Perceived QoL in women with endometriosis is most commonly associated with their acceptance of illness, BMI, negative impact of symptoms on the relationship with the partner, and dyspareunia. To improve these women's lives, care should also respond to the social, emotional, and sexual issues resulting from the illness. Such interventions will contribute to improved comfort and QoL among these women.

Keywords: Acceptance of illness; Endometriosis; Quality of life; Women.

MeSH terms

  • Adolescent
  • Adult
  • Cross-Sectional Studies
  • Endometriosis / psychology*
  • Female
  • Humans
  • Middle Aged
  • Quality of Life / psychology*
  • Young Adult