Capturing Patient-Reported Outcomes During the COVID-19 Pandemic: Development of the COVID-19 Global Rheumatology Alliance Patient Experience Survey

Arthritis Care Res (Hoboken). 2020 Jul;72(7):871-873. doi: 10.1002/acr.24257.


The coronavirus disease 2019 (COVID‐19) Global Rheumatology Alliance (C19‐GRA) was formed in March 2020 as a grassroots organization to coordinate the response of the international rheumatology community to the pandemic [1]. The C19‐GRA launched an international, secure, de‐identified physician registry of patients with rheumatic diseases infected with the severe acute respiratory syndrome coronavirus 2 (SARS‐CoV‐2) to provide insights into the management and treatment of COVID‐19 in this population.

Publication types

  • Editorial

MeSH terms

  • Betacoronavirus*
  • COVID-19
  • Coronavirus Infections / diagnosis
  • Coronavirus Infections / epidemiology*
  • Global Health*
  • Humans
  • Pandemics*
  • Patient Reported Outcome Measures*
  • Pneumonia, Viral / diagnosis
  • Pneumonia, Viral / epidemiology*
  • Rheumatology / methods
  • SARS-CoV-2
  • Surveys and Questionnaires*