"It's Me as a Person, Not Me the Disease": Patient Perceptions of an HIV Care Model Designed to Engage Persons with Complex Needs

AIDS Patient Care STDS. 2020 Jun;34(6):267-274. doi: 10.1089/apc.2019.0310.

Abstract

Ending the HIV epidemic will require dedicated efforts to engage the highest need persons living with HIV (PLWH) in treatment. We assessed patient perceptions of a clinic in Seattle, Washington, that is designed for PLWH who do not engage in conventional HIV care. The Max Clinic provides walk-in access to care, incentives for blood draws and achieving viral suppression, and intensive case management. We conducted semistructured individual interviews with 25 patients purposively recruited to obtain diverse viewpoints. Interviews were audio-recorded and transcribed. Analysis used a constant comparative approach to identify major themes related to the components of the program. For many participants, engagement in the Max Clinic was the first time they had success with HIV treatment. Relationships with clinic staff and the ability to receive care on a walk-in basis had the strongest influences on engagement. Participants felt that Max Clinic staff attended to their social circumstances in ways that were distinct from prior care experiences. Walk-in visits removed perceived stigma associated with failure to keep appointments and provided immediate attention to acute concerns. Financial incentives initially motivated participants to attend clinic and take medications, but were less important for supporting ongoing engagement in care. Food incentives motivated patients to seek care and helped them focus on health issues. In summary, patients identified walk-in access to care, monetary and food incentives, and relationships with clinic staff, particularly case managers, as the key elements of an HIV clinic model for high-need PLWH.

Keywords: HIV care continuum; engagement in care; homelessness; mental health; substance use.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Adult
  • Ambulatory Care Facilities
  • Anti-HIV Agents / therapeutic use*
  • Case Management
  • Continuity of Patient Care / statistics & numerical data*
  • Female
  • HIV Infections / drug therapy
  • HIV Infections / psychology*
  • Health Behavior
  • Health Services Accessibility / statistics & numerical data
  • Humans
  • Interviews as Topic
  • Male
  • Motivation*
  • Patient Acceptance of Health Care / statistics & numerical data*
  • Program Evaluation
  • Qualitative Research
  • Social Stigma*
  • Substance-Related Disorders / complications*
  • Substance-Related Disorders / psychology
  • Vulnerable Populations
  • Washington / epidemiology

Substances

  • Anti-HIV Agents