Compensation and reparations for victims and bystanders of the U.S. Public Health Service research studies in Tuskegee and Guatemala: Who do we owe what?

Bioethics. 2020 Nov;34(9):893-898. doi: 10.1111/bioe.12784. Epub 2020 Jun 30.

Abstract

Using the infamous research studies in Tuskegee and Guatemala, the article examines the difference between victims and bystanders. The victims can include families, sexual partners, and children not just the participants. There are also the bystanders in the populations who are affected, even vaguely, decades after the initial studies took place. Differing reparations for victims and bystanders through lawsuits and historical acknowledgments has to be part of broader discussions of historical justice, and the weighing of the impact of racism and imperial research endeavors.

Keywords: Guatemala Experiments; Tuskegee Syphilis Study; bystanders; compensation; historical apologies; human subjects research; populations; reparations; research ethics.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Child
  • Compensation and Redress
  • Guatemala
  • Health Services
  • Human Experimentation
  • Humans
  • Syphilis*
  • United States
  • United States Public Health Service