From the Other Side of the Bed: Lived Experiences of Registered Nurses as Family Caregivers

J Nurs Care Qual. 2021 Jul-Sep;36(3):279-284. doi: 10.1097/NCQ.0000000000000516.

Abstract

Background: To provide patient- and family-centered care, health care providers must understand the caregiver experience. Evidence suggests that registered nurses functioning as family caregivers (RNFCs) may have unique experiences and challenges.

Purpose: The purpose of this study was to explore the lived experiences of RNFCs during an adult family member's episode of care in the southern United States.

Methods: A descriptive phenomenological approach was used to describe the essence of the RNFC experience throughout an episode of care. Twenty-five participants were recruited for semistructured, audio-recorded interviews. Data were analyzed using descriptive data analysis and constant comparison techniques.

Results: Participants were predominantly female (88%). The essence of the phenomenon was dual roles. Five themes emerged: (1) blurring the boundaries, (2) revealing my identity, (3) having insider knowledge, (4) managing expectations, and (5) learning from my experience.

Conclusions: While caregiver experiences may be similar, RNFCs struggle with dual roles of registered nurse and caregiver, occasionally blurring boundaries of care.

MeSH terms

  • Adult
  • Caregivers*
  • Female
  • Health Personnel
  • Humans
  • Nurses*
  • Qualitative Research
  • United States