Managing endometriosis: a cross-sectional survey of women in Australia

J Psychosom Obstet Gynaecol. 2022 Sep;43(3):265-272. doi: 10.1080/0167482X.2020.1825374. Epub 2020 Oct 13.


Purpose: Endometriosis is a chronic, inflammatory condition. The aim was to describe the self-reported disease characteristics and factors associated with the use of different treatment modalities among women with surgically diagnosed endometriosis.

Method: A cross-sectional online survey featuring 58 fixed-response items measuring disease characteristics, self-efficacy, health service usage, and treatment approaches was conducted. Logistic regression was used to explore the factors associated with different treatment modalities.

Results: Complete data were available from 620 respondents. Average delay to diagnosis was 6.4 years. Despite medical and surgical intervention, 65.8% reported dysmenorrhea and 61.1% reported dyspareunia, and 82.7% reported chronic pelvic pain in the last 3 months. Respondents had consulted an average of three different health practitioner specialties in the previous 12 months for their endometriosis.

Discussion: A chronic disease management plan (CDMP) may be a useful mechanism to coordinate multidisciplinary care among women who experience ongoing symptoms.

Keywords: Endometriosis; chronic disease; self-management; women's health.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Chronic Disease
  • Cross-Sectional Studies
  • Dysmenorrhea / epidemiology
  • Dysmenorrhea / therapy
  • Dyspareunia* / epidemiology
  • Dyspareunia* / etiology
  • Dyspareunia* / therapy
  • Endometriosis* / epidemiology
  • Endometriosis* / surgery
  • Female
  • Humans
  • Pelvic Pain / etiology
  • Pelvic Pain / therapy