Autism in the Western Cape province of South Africa: Rates, socio-demographics, disability and educational characteristics in one million school children

Autism. 2021 May;25(4):1076-1089. doi: 10.1177/1362361320978042. Epub 2020 Dec 17.

Abstract

There is very little information about autism spectrum disorder in South Africa and not much is known about children with autism spectrum disorder and their educational needs. In this study, we searched for all children with autism spectrum disorder attending schools in the Western Cape province of South Africa and compared our findings with the profile of people living in the province. We found fewer children with autism spectrum disorder in schools than expected (0.08%) and co-occurring conditions (intellectual disability = 22.2%, attention-deficit/hyperactivity disorder = 2.6% and epilepsy = 0.7%) were reported at lower rates. More children were from White racial groups and from English-speaking homes compared with the Western Cape population demographics. Most of the children (89%) attended schools for children with Special Educational Needs and only 10% were in Ordinary/Mainstream schools. Eighty-three percent attended schools in urban areas and 17% in rural areas. There was a 76.03% increase in children with autism spectrum disorder in schools between 2012 and 2016. Our findings support the need for better identification and reporting of children with autism spectrum disorder in the education system. We propose urgent review and strengthening of education systems for children with autism spectrum disorder in the Western Cape province and in other parts of South Africa.

Keywords: autism education; autism spectrum disorder; low- and middle-income countries.

MeSH terms

  • Autism Spectrum Disorder* / epidemiology
  • Autistic Disorder*
  • Child
  • Demography
  • Humans
  • Schools
  • South Africa / epidemiology